From our experience, it is best to not just ‘google’ these things, so please find below some potentially useful sources of information:
the national site has a wide range of guides, packs and publications from research into MND, financial aid/benefits available, treatments to personal experiences
Carers UK – support for and understanding the rights of carers
Liam Dwyer started Disabled4Disabled because all he seemed to do was research on what he needed when he was first diagnosed with MND. His website has many helpful links to various services and equipment available.
St Peter & St James is located on the border of Wivelsfield Green and North Chailey in East Sussex, Their mission as a registered charity is to support you and those important to you to live well towards the end of life by giving compassion, hope and quality care.
St Catherine’s Hospice has its main site in Malthouse Road, Crawley, West Sussex, RH10 6BH, The hospice is a charity dedicated to providing specialised end of life care and support to local people, their families, friends and carers.