As well as providing support, campaigning is an important part of the Branch’s activities. These are led by our Campaign Contact Liam Dwyer.
MND is a relatively rare illness, so raising awareness, ensuring the quality of care and the specific requirements of MND is fundamental.
Many of the campaigns are led by National Office, but with services, care and support varying so much by region and county, there are local campaigns we need to take on too. This is just some of what we’ve been up recently.
There is an on-going campaign across the country to secure better service and provision for communication aids. Surrey and Sussex were highlighted as one of the most concerning areas in England with regard to access to Augmentative and Alternative Communication (AAC). Led by our brilliant Campaign Contact, Liam Dwyer, we’ve lobbied local MPs, empowered those MPs to raise concerns to NHS England, given evidence to an All-Party Parliamentary Group before they submitted a report that was discussed in the House of Commons and much more. Progress has been seen with a report presented by NHS England’s office for Surrey, Sussex & Kent in October updating us on the improvements being made.
Between June 2012 and May 2015, all Branches up and down the country promoted the MND Charter. The Charter set out commitments and rights for those with MND and their carers to help overcome problems with the timely access of services. By collecting over 33,000 signatures nationwide we were able to raise awareness and lobby the government, and now Councils to adopt and take on these commitments.