From 23–28 January, we’re walking to shine a light on SOD1 MND and the postcode lottery in care and treatment.

Start

23 January, 9:00am Friday

Southampton Hospital

A deliberate place to begin — where diagnosis and delay become real.

The walk

We’re using largely accessible routes, aiming for step-free, well-surfaced paths wherever possible.

You can join us for any part of the route — 20 minutes, a couple of miles, or a full day. Every person who comes along makes the message louder.

Finish

28 January Wed– Westminster

We’ll finish with a meeting at Westminster with Caroline Nokes MP and Ian Byrne MP, Chair of the APPG for MND.

At the finish, we’ll cut through a length of red tape together — symbolising the need to cut through unnecessary bureaucracy and delay that are actively harming people with MND and other rare conditions.

Join us at any point — short stretches count.

Day 1 – Fri 23 Jan

Southampton Hospital → Winchester

~14 miles (halfway: Eastleigh) – overnight: Winchester

Day 2 – Sat 24 Jan

Winchester → Basingstoke

~15 miles (halfway: Micheldever) – overnight: Basingstoke

Day 3 – Sun 25 Jan

Basingstoke → Farnham

~17 miles (halfway: Odiham) – overnight: Farnham

Day 4 – Mon 26 Jan

Farnham → Woking

~14 miles (halfway: Pirbright) – overnight: Woking

Day 5 – Tues 27 Jan

Woking → Kingston upon Thames

~16 miles (halfway: Walton-on-Thames) – overnight: Kingston upon Thames

Day 6 – Wed 28 Jan

Kingston upon Thames → Westminster

~9 miles (halfway: Putney) – finish near Parliament

Key days to join

Day 1 (Fri 23 Jan) – 9am Southampton Hospital→ Winchester

Strong start, visibility, easier for people to join.

Day 6 (wed 28 Jan) – Kingston → Westminster- meeting at Westminster as close to 2pm as possible .

The message lands where decisions are made. If you can only do one day, make it this one.

Walk with us, bring someone with you and share this post.

If walking isn’t possible, come to the start or finish for visibility

Wear something bright — Lillia’s Light — so we’re easy to spot

People with a rare, aggressive form of MND are being left waiting while time and function are lost. Families are forced to push, chase and fight when they should be supported.

We do.

Accessibility & safety

Routes are largely accessible, but may need to change due to weather or other unforeseen issues. Participation is entirely voluntary and at your own risk. This is a community-led walk, not a managed event — please take responsibility for your own safety, mobility and support needs.

If you want to join, comment “I’m in” and which day you can do.

Day 1 and Day 6 are the easiest points to join, but any part of the route matters.

Because one more light matters.